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The Access Review Committee (ARC) has been established as a vital advisory body within the 100,000 Genomes Project. The primary purpose of the ARC is to provide an independent examination of requests for data access based on the principles in the Data Access and Acceptable Uses Policy of Genomics England, and as outlined in the Research Ethics Committee (REC) approved 100,000 Genomes Project ProtocolImage Added.

The ARC delivers decisions to approve, decline, or amend requests for access to data. Such decisions are made taking into account factors such as: the nature of the research, the proportionality of the dataset size, and the risk of identifiability. External sources of expertise may be called upon to assist the decision-making process by evaluating the perceived potential risks. This mechanism will be in place to ensure the dataset is being put to responsible research activities. 

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If you would like to find out more about the members of ARC please visit the Genomics EnglandImage Added website.

Publication Committee

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