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Prior to being considered for data access, each GeCIP domain must submit a detailed research plan to the Access Review Committee (ARC) who will consider whether the research plans of the domain are in line with the stated acceptable uses of the Genomics England dataset. The acceptable uses are outlined in Research Ethics Committee (REC) approved 100,000 Genomes Project Protocol and the Data Access and Acceptable Uses Policy. The ARC will decide to approve, decline, or amend requests for access to data. External expertise may be called upon to assist the decision-making process, where appropriate. #got to here#

Participation Agreement 

Each institution that is represented within GeCIP is required to sign a contract, the Participation Agreement with Genomics England. The provisions of the agreement are manifold, but essentially collectively it outlines the various obligations of both the institution and Genomics England with regard to the data access granted to that institution's researchers. It also deals with the ownership of Intellectual Property (IP) resulting from research on the 100,000 Genomes Project, citing the project's IP Policy . To promote a fair, open and co-operative environment, all GeCIP members are expected to work within the agreed terms of the Participation Agreement signed by their host institution, and abide by the terms outlined in the GeCIP Rules. Detailed information on these and other documentation related to GeCIP guidance and policies can be found on the Important Documents and Resources page.

Account Issue

When it comes time to give you access to the data, a Genomics England account will be issued to you using the institutional email address which we hold for you. Included within this email will be your username and instructions on how to access your password using a secure and encrypted service called ???. Your Research Environment username and password are part of a Single Sign-On system and will be used to gain access to a number of other systems within the Embassy. Prior to gaining access there are a number of steps to be undertaken:

  1. You will need to complete an Information Governance course.
  2. You will need to sign the GeCIP Rules agreement.
  3. You will need to inform the Genomics England Service Desk of the successfull completion of Information Governance

Information Governance training

To protect patient confidentiality and ensure that all researchers understand the sensitivity of the data and how to maintain its security, we ask that all individuals requesting access to the Genomics England Research Environment undertake a course on Information Governance.

You must first access the Genomics England Moodle training environment. There will be a training course entitled 'Information Governance and GeCIP Rules'.will be reviewed and granted only for specific, approved purposes in accordance with informed consent and the ethical scope of the Protocol, and any attempted use of the dataset beyond the specified purpose may lead to exclusion. To ensure that all GeCIP members understand the importance of, and can successfully work within, the principals of our IG policies, GeCIP members’ are all required to complete our simple online IG short course before they are given access to the Research Environment.

Embassy Access

Research Embassy access structure and account requirements 

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  •  Link to Participation Agreement when updated
  •  Link to IP Policy when updated
  •  Get details of the encrypted password thing.