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The institutions marked "Signed PA" below 105 institutions have signed our Participation Agreement. Those that are not marked as "Signed PA", or that do not appear on this list, have not yet signed.

See our Participation Agreement FAQs.

InstitutionParticipation Agreement status
AADC Research Trust
 

Academisch Medisch CentrumSigned PA
Aix Marseille UniversiteSigned PA
Albert Einstein College of Medicine
 

Alder Hey Children's HospitalSigned PA
Aristotle University of Thessaloniki
 

Azerbaijan National Academy of Sciences
 

Australian National UniversitySigned PA
Babraham InstituteSigned PA
Bangor University
 

Barking Havering and Redbridge University Hospitals
 

Barts Health NHS Trust
 

Basildon and Thurrock Hospitals NHS Foundation Trust
 

Baylor College Of Medicine
 

Belfast Health And Social Care Trust
 

Bellvitge Biomedical Research InstituteSigned PA
Birkbeck University of London
 

Birmingham Women's and Children's NHS Foundation TrustSigned PA
Boston Children's Hospital
 

Bournemouth University
 
Signed PA
Brigham and Women's Hospital
 

Brighton and Sussex University HospitalsSigned PA
Bristol UniversitySigned PA
Broad Institute of MIT and Harvard
 

Brown University
 

Brunel University LondonSigned PA
Cambridge University Hospitals NHS Foundation TrustSigned PA
Cancer Research UK
 

Cancer Research UK Cambridge Institute
 

Cardiff and Vale University Health BoardSigned PA
Cardiff UniversitySigned PA
Centre for Genomic Regulation
 

Centre for the Advancement of Sustainable Medical Innovation
 

Centre Nacional d'Analisi Genomica
 

Centro Nacional de Biotecnologia (CNB-CSIC)Signed PA
Centro Nacional de Investigaciones Oncologicas
 

Chelsea and Westminster Hospital NHS Foundation Trust
 

Children's Hospital of Eastern Ontario Research InstituteSigned PA
Children's Hospital of Philadelphia
 

Children's National Health System
 

Chinese Academy Of Medical Sciences
 

Christie NHS Foundation TrustSigned PA
Ciliopathy AllianceSigned PA
Cleveland Clinic
 

Columbia University
 

Consejo Superior de Investigaciones Cientificas
 

Croydon Health Services NHS TrustSigned PA
Dalhousie University
 

Datchet Health Centre
 

DEBRASigned PA
Derby Teaching Hospitals NHS Foundation Trust
 

Dudley Group NHS Foundation Trust
 

Duke University
 

Durham UniversitySigned PA
East and North Hertfordshire NHS TrustSigned PA
Epsom and St Helier University Hospitals NHS Trust
 

Erasmus University Medical CenterSigned PA
European Bioinformatics Institute
 
Signed PA
European Institute for Health Records
 

European Molecular Biology Laboratory
 
Signed PA 
European Organisation for Rare DiseasesOpted out of data access
Francis Crick InstituteSigned PA
Frimley Health NHS Foundation Trust
 

Garvan Institute of Medical Research
 

Genetic Alliance UKSigned PA
Genetic Alliance US
 

Genome Analysis Centre
 

Georgia State University
Ghent University
 
Signed PA
Ghent
Glasgow Caledonian University
 
Signed PA
Gloucestershire Hospitals NHS Foundation Trust
 

Great Ormond Street HospitalSigned PA
Grampian Health BoardSigned PA
Gustave Roussy
 

Guy's and St Thomas' NHS Foundation Trust
 Signed
Signed PA
Gwangju Institute of Science and Technology
 

Hamad Bin Khalifa UniversitySigned PA
Hannover Medical School
 

Harvard University
 

Health Education England
 

Heart of England NHS Foundation Trust
 

Hellenic Pasteur InstituteSigned PA
Hokkaido University
 

Homerton University Hospital NHS Foundation TrustSigned PA
Hopital Saint Louis
 

Hospital for Sick ChildrenSigned PA
Hospital Infantil Universitario Nino Jesus
 

Hull and East Yorkshire Hospitals NHS Trust
 

Icahn School of Medicine at Mount Sinai
 

Ichthyosis Support Group
 

Imagine Institute
 

Imperial College Healthcare
 

Imperial College LondonSigned PA
Indiana University
 
Signed PA
InsermSigned PA
Institut Curie
 

Institut de Recherches Cliniques de Montreal
 

Institut du Cerveau et de la Moelle epiniere
 
Signed PA
Institut National de la Sante et de la Recherche Medicale
 

Institut Paoli-Calmettes
 

Institute for Research in Biomedicine BarcelonaSigned PA
Institute of Cancer ResearchSigned PA
Institute of Cardiometabolism and Nutrition
 

Institute of Food Research
 

Istituto Superiore di Sanita
 

Instituto Nacional de Saúde Doutor Ricardo JorgeSigned PA
Jackson Laboratory
 

Johns Hopkins University
 

Johns Hopkins University School of MedicineSigned PA
Josep Carreras Leukaemia Research InstituteSigned PA
Karolinska Institutet
 

Keele University
 

King's College Hospital NHS Foundation TrustSigned PA
King's College LondonSigned PA
Lancashire Teaching Hospitals NHS Foundation Trust
 

Lancaster UniversitySigned PA
Lebanese American University
 

Leeds Congenital Hearts
 

Leeds Teaching Hospitals NHS Trust
 
Signed PA
Leiden University Medical Center
 

Leipzig University
 

Liverpool Heart and Chest Hospital NHS Foundation Trust
 

Liverpool School of Tropical Medicine
 

Liverpool Womens NHS Foundation TrustSigned PA
London North West Healthcare NHS TrustSigned PA
London School of Economics and Political ScienceSigned PA
London School of Hygiene and Tropical Medicine
 

Ludwig Boltzmann Institute of Osteology
 

Ludwig Maximilian University of Munich
 

Lund UniversitySigned PA
Luton and Dunstable University Hospital NHS Foundation TrustSigned PA
Macquarie University
 
Signed PA 
Maidstone and Tunbridge Wells NHS Trust
 

Manchester University NHS Foundation TrustSigned PA
Massachusetts General Hospital
 

Massachusetts Institute of Technology
 

Max Planck Institute
 

McGill UniversitySigned PA
Medical Research CouncilSigned PA
Medicines & Healthcare products Regulatory Agency
 

Melanoma Focus
 Opted
Opted out of data access
Memorial Sloan Kettering Cancer Center
 

Michigan State University
 

Middlesex UniversitySigned PA
Moffitt Cancer Center
 

Monash University
 
Signed PA
Moorfields Eye Hospital NHS Foundation Trust
 

National and Kapodistrian University of AthensSigned PA
National Cancer Centre Singapore SingHealth
 

National Center for Advancing Translational Sciences
 National Human Genome Research Institute 

National Institute of Allergy and Infectious Diseases
 

National Institute of Mental Health
 

National Institute of Neurological Disorders and Stroke
 

National Institute of Neuroscience
 

National Institutes of Health
 

National Research Council of ItalySigned PA
Nationwide Children's HospitalSigned PA
Newcastle upon Tyne Hospitals NHS Foundation Trust
 

NHS Blood and Transplant
 

NHS England
 

NHS Greater Glasgow and Clyde
 

NHS Lothian
 

NHS Tayside
 

NIHR Oxford Biomedical Research Centre
 

Norfolk and Norwich University Hospitals NHS Foundation TrustSigned PA
North Bristol NHS TrustSigned PA
Norwegian University of Science and Technology
 

Nottingham Trent UniversitySigned PA
Nottingham University Hospitals NHS TrustSigned PA
Odense University Hospital
 

Office of Health Economics
 

Ontario Institute for Cancer Research
 Signed
Signed PA
Osaka University
 

Oxford Brookes University
 
Signed PA
Oxford Deanery
 

Oxford University Hospitals NHS Foundation Trust
 
 Signed PA
Papworth Hospital NHS Foundation Trust
 

Pharmacological Evaluation Institute of JapanSigned PA
PHG FoundationOpted out of data access
Plymouth Hospitals NHS Trust 
Poole Hospital NHS Foundation Trust
 

Portsmouth Hospitals NHS TrustSigned PA
Primary Ciliary Dyskinesia Family Support GroupOpted out of data access
Queen Mary University of LondonSigned PA
Queen's University BelfastSigned PA
Queensland Institute of Medical Research Berghofer Medical Research Institute
 
Signed PA
Radboud University
 

Rady Children's Institute for Genomic MedicineSigned PA
Research Center for Molecular Medicine of the Austrian Academy of ScienceSigned PA
RIKEN
 
Signed PA
Robert Jones and Agnes Hunt Orthopaedic Hospital NHS Foundation Trust
 
 Signed PA
Roswell Park Cancer Institute
 

Royal Brompton and Harefield NHS Foundation Trust
 
Signed PA
Royal College of Surgeons in IrelandSigned PA
Royal Devon and Exeter Foundation NHS TrustSigned PA
Royal Free London NHS Foundation TrustSigned PA
Royal Liverpool and Broadgreen University Hospitals NHS Trust
 

Royal Marsden NHS Foundation TrustSigned PA
Royal National Orthopaedic Hospital NHS TrustSigned PA
Royal United Hospitals Bath NHS Foundation Trust
 

Royal Wolverhampton Hospitals NHS Trust
 

Sage Bionetworks
 

Saint Petersburg State UniversitySigned PA
Salford Royal NHS Foundation TrustSigned PA
Salisbury NHS Foundation Trust
 

San Raffaele Hospital
 

Sandwell and West Birmingham Hospitals NHS Trust
 

Sanford Burnham Prebys Medical Discovery InstituteSigned PA
Shanxi UniversitySigned PA
Sheffield Children's NHS Foundation TrustSigned PA
Sheffield Hallam University
 

Sheffield Teaching Hospitals NHS Foundation Trust
 

Shrewsbury and Telford Hospital NHS TrustSigned PA
Simon Fraser University
 

South Tees Hospitals NHS Foundation Trust
 

St George's University Hospitals NHS Foundation TrustSigned PA
St George's University of LondonSigned PA
Stanford University
 

Swansea UniversitySigned PA
Swinburne University of Technology
 

Technische Universitat Munchen
 

Tel Aviv Sourasky Medical Center
 

Temple University
 
Signed PA
The Open University
 

Thomas Jefferson University
 

Trinity College Dublin
 

UK Genetic Testing Network
 

Ulster University
 

Uniklinik Koln
 

Unique
 

Universitair Medisch Centrum Utrecht
 

Universitat Pompeu FabraSigned PA
Universitatsklinikum Munster
 

University College Dublin
 

University College LondonSigned PA
University College London Hospitals
 
Signed PA
University Hospital Southampton NHS Foundation TrustSigned PA
University Hospitals Birmingham NHS Foundation TrustSigned PA
University Hospitals Bristol NHS Foundation TrustSigned PA
University Hospitals Leuven
 

University Hospitals of Leicester NHS TrustSigned PA
University Hospitals Plymouth Hospitals NHS TrustSigned PA
University Medical Center GroningenSigned PA
University of Aberdeen
 
Signed PA
University of AdelaideSigned PA
University of Alberta
 

University of Amsterdam
 

University of Antwerp
 

University of Auckland
 

University of BaselSigned PA
University of BathSigned PA
University of Bergen
 

University of BirminghamSigned PA
University of
Birmingham
BrightonSigned PA
University of Bonn
 

University of Bradford
 

University of British Columbia
 

University of CalgarySigned PA
University of California, Berkeley
 

University of California, Davis
 

University of California, Los Angeles
 

University of California, San Diego
 

University of California, San Francisco
 

University of California, Santa Cruz
 

University of CambridgeSigned PA
University of Central Lancashire
 

University of Chicago
 

University of Colorado Denver Opted out of data access
University of Copenhagen Signed PA
University of Duisburg-Essen
 

University of DundeeSigned PA
University of Dusseldorf
 

University of East AngliaSigned PA
University of EdinburghSigned PA
University of EssexSigned PA
University of ExeterSigned PA
University of Ferrara
 

University of FloridaSigned PA
University of Geneva
 

University of Genoa
 

University of Glasgow
 
Signed PA
University of Gottingen
 

University of Guelph
 

University of Hawaii
 

University of Hertfordshire
 

University of Iowa
 

University of KentSigned PA
University of LeedsSigned PA
University of LeicesterSigned PA
University of LeuvenSigned PA
University of Liege
 

University of LincolnSigned PA
University of LiverpoolSigned PA
University of Louisville
 

University of ManchesterSigned PA
University of Maryland
 

University of MelbourneSigned PA
University of Miami
 

University of Michigan
 

University of Milan
 

University of Minnesota Twin Cities
 

University of Modena and Reggio Emilia
 

University of Monterrey
 

University of Naples Federico II
 

University of NavarraSigned PA
University of Newcastle Upon TyneSigned PA
University of North Carolina at Chapel Hill
 

University of North Carolina Healthcare
 

University of NorthamptonSigned PA
University of NottinghamSigned PA
University of Oklahoma
 

University of OtagoSigned PA
University of OxfordSigned PA
University of Pavia
 

University of Pennsylvania
 

University of Pisa
 

University of Queensland
 
Signed PA 
University of ReadingSigned PA
University of Santiago de CompostelaSigned PA
University of SheffieldSigned PA
University of SienaSigned PA
University of South Wales
 

University of SouthamptonSigned PA
University of St AndrewsSigned PA
University of SurreySigned PA
University of SussexSigned PA
University of Sydney
 

University of Tasmania
University of
Tasmania
Tennessee
 
Signed PA
University of Texas Southwestern Medical Center
 

University of the Highlands and the IslandsSigned PA
University of the West of EnglandSigned PA
University of Toronto
 

University of Tubingen
University of
Tubingen
Turku
 
Signed PA
University of Twente
 

University of Ulm
 

University of WarwickSigned PA
University of Washington
 

University of Western AustraliaSigned PA
University of WestminsterSigned PA
University of YorkSigned PA
University of Zurich
 

Uppsala University
 

Vanderbilt University
 

Velindre NHS Trust
 

Victor Chang Cardiac Research InstituteSigned PA
Victoria University of WellingtonSigned PA
Walton Centre NHS Foundation Trust
 

Washington University in St Louis
 

Weizmann Institute of Science
 

Wellcome Trust
 

Wellcome Trust Sanger InstituteSigned PA
West Midlands Academic Health Science Network
 

Yale University