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InstitutionParticipation Agreement status
AADC Research Trust 
Academisch Medisch CentrumSigned PA
Aix Marseille UniversiteSigned PA
Albert Einstein College of Medicine 
Alder Hey Children's HospitalSigned PA
Aristotle University of Thessaloniki 
Azerbaijan National Academy of Sciences 
Babraham InstituteSigned PA
Bangor University 
Barking Havering and Redbridge University Hospitals 
Barts Health NHS Trust 
Basildon and Thurrock Hospitals NHS Foundation Trust 
Baylor College Of Medicine 
Belfast Health And Social Care Trust 
Bellvitge Biomedical Research InstituteSigned PA
Birkbeck University of London 
Birmingham Women's and Children's NHS Foundation TrustSigned PA
Boston Children's Hospital 
Bournemouth UniversitySigned PA
Brigham and Women's Hospital 
Brighton and Sussex University HospitalsSigned PA
Bristol UniversitySigned PA
Broad Institute of MIT and Harvard 
Brown University 
Brunel University LondonSigned PA
Cambridge University Hospitals NHS Foundation TrustSigned PA
Cancer Research UK 
Cancer Research UK Cambridge Institute 
Cardiff and Vale University Health BoardSigned PA
Cardiff UniversitySigned PA
Centre for Genomic Regulation 
Centre for the Advancement of Sustainable Medical Innovation 
Centre Nacional d'Analisi Genomica 
Centro Nacional de Biotecnologia (CNB-CSIC)Signed PA
Centro Nacional de Investigaciones Oncologicas 
Chelsea and Westminster Hospital NHS Foundation Trust 
Children's Hospital of Eastern Ontario Research InstituteSigned PA
Children's Hospital of Philadelphia 
Children's National Health System 
Chinese Academy Of Medical Sciences 
Christie NHS Foundation TrustSigned PA
Ciliopathy AllianceSigned PA
Cleveland Clinic 
Columbia University 
Consejo Superior de Investigaciones Cientificas 
Croydon Health Services NHS TrustSigned PA
Dalhousie University 
Datchet Health Centre 
DEBRASigned PA
Derby Teaching Hospitals NHS Foundation Trust 
Dudley Group NHS Foundation Trust 
Duke University 
Durham UniversitySigned PA
East and North Hertfordshire NHS TrustSigned PA
Epsom and St Helier University Hospitals NHS Trust 
European Bioinformatics InstituteSigned PA
European Institute for Health Records 
European Molecular Biology LaboratorySigned PA 
European Organisation for Rare DiseasesOpted out of data access
Francis Crick InstituteSigned PA
Frimley Health NHS Foundation Trust 
Garvan Institute of Medical Research 
Genetic Alliance UKSigned PA
Genetic Alliance US 
Genome Analysis Centre 
Georgia State University 
Ghent University 
Gloucestershire Hospitals NHS Foundation Trust 
Great Ormond Street HospitalSigned PA
Gustave Roussy 
Guy's and St Thomas' NHS Foundation TrustSigned PA
Gwangju Institute of Science and Technology 
Hannover Medical School 
Harvard University 
Health Education England 
Heart of England NHS Foundation Trust 
Hellenic Pasteur InstituteSigned PA
Hokkaido University 
Homerton University Hospital NHS Foundation TrustSigned PA
Hopital Saint Louis 
Hospital for Sick ChildrenSigned PA
Hospital Infantil Universitario Nino Jesus 
Hull and East Yorkshire Hospitals NHS Trust 
Icahn School of Medicine at Mount Sinai 
Ichthyosis Support Group 
Imagine Institute 
Imperial College Healthcare 
Imperial College LondonSigned PA
Indiana University Signed PA
Institut Curie 
Institut de Recherches Cliniques de Montreal 
Institut du Cerveau et de la Moelle epiniere 
Institut National de la Sante et de la Recherche Medicale 
Institut Paoli-Calmettes 
Institute for Research in Biomedicine BarcelonaSigned PA
Institute of Cancer ResearchSigned PA
Institute of Cardiometabolism and Nutrition 
Institute of Food Research 
Istituto Superiore di Sanita 
Instituto Nacional de Saúde Doutor Ricardo JorgeSigned PA
Jackson Laboratory 
Johns Hopkins University 
Johns Hopkins University School of MedicineSigned PA
Josep Carreras Leukaemia Research InstituteSigned PA
Karolinska Institutet 
Keele University 
King's College Hospital NHS Foundation TrustSigned PA
King's College LondonSigned PA
Lancashire Teaching Hospitals NHS Foundation Trust 
Lancaster UniversitySigned PA
Lebanese American University 
Leeds Congenital Hearts 
Leeds Teaching Hospitals NHS Trust 
Leiden University Medical Center 
Leipzig University 
Liverpool Heart and Chest Hospital NHS Foundation Trust 
Liverpool School of Tropical Medicine 
Liverpool Womens NHS Foundation TrustSigned PA
London North West Healthcare NHS TrustSigned PA
London School of Economics and Political ScienceSigned PA
London School of Hygiene and Tropical Medicine 
Ludwig Boltzmann Institute of Osteology 
Ludwig Maximilian University of Munich 
Lund UniversitySigned PA
Luton and Dunstable University Hospital NHS Foundation TrustSigned PA
Macquarie UniversitySigned PA 
Maidstone and Tunbridge Wells NHS Trust 
Manchester University NHS Foundation TrustSigned PA
Massachusetts General Hospital 
Massachusetts Institute of Technology 
Max Planck Institute 
McGill UniversitySigned PA
Medical Research CouncilSigned PA
Medicines & Healthcare products Regulatory Agency 
Melanoma FocusOpted out of data access
Memorial Sloan Kettering Cancer Center 
Michigan State University 
Middlesex UniversitySigned PA
Moffitt Cancer Center 
Monash University 
Moorfields Eye Hospital NHS Foundation Trust 
National and Kapodistrian University of AthensSigned PA
National Cancer Centre Singapore SingHealth 
National Center for Advancing Translational Sciences 
National Human Genome Research InstituteSigned PA
National Institute of Allergy and Infectious Diseases 
National Institute of Mental Health 
National Institute of Neurological Disorders and Stroke 
National Institute of Neuroscience 
National Institutes of Health 
National Research Council of ItalySigned PA
Newcastle upon Tyne Hospitals NHS Foundation Trust 
NHS Blood and Transplant 
NHS England 
NHS Greater Glasgow and Clyde 
NHS Lothian 
NHS Tayside 
NIHR Oxford Biomedical Research Centre 
Norfolk and Norwich University Hospitals NHS Foundation TrustSigned PA
North Bristol NHS TrustSigned PA
Norwegian University of Science and Technology 
Nottingham University Hospitals NHS TrustSigned PA
Odense University Hospital 
Office of Health Economics 
Ontario Institute for Cancer ResearchSigned PA
Osaka University 
Oxford Brookes University 
Oxford Deanery 
Oxford University Hospitals NHS Foundation Trust Signed PA
Papworth Hospital NHS Foundation Trust 
PHG FoundationOpted out of data access
Plymouth Hospitals NHS Trust 
Poole Hospital NHS Foundation Trust 
Portsmouth Hospitals NHS TrustSigned PA
Primary Ciliary Dyskinesia Family Support GroupOpted out of data access
Queen Mary University of LondonSigned PA
Queen's University BelfastSigned PA
Queensland Institute of Medical Research Berghofer Medical Research Institute 
Radboud University 
Research Center for Molecular Medicine of the Austrian Academy of ScienceSigned PA
RIKEN 
Robert Jones and Agnes Hunt Orthopaedic Hospital NHS Foundation Trust Signed PA
Roswell Park Cancer Institute 
Royal Brompton and Harefield NHS Foundation TrustSigned PA
Royal College of Surgeons in IrelandSigned PA
Royal Devon and Exeter Foundation NHS TrustSigned PA
Royal Free London NHS Foundation TrustSigned PA
Royal Liverpool and Broadgreen University Hospitals NHS Trust 
Royal Marsden NHS Foundation TrustSigned PA
Royal National Orthopaedic Hospital NHS TrustSigned PA
Royal United Hospitals Bath NHS Foundation Trust 
Royal Wolverhampton Hospitals NHS Trust 
Sage Bionetworks 
Saint Petersburg State UniversitySigned PA
Salford Royal NHS Foundation TrustSigned PA
Salisbury NHS Foundation Trust 
San Raffaele Hospital 
Sandwell and West Birmingham Hospitals NHS Trust 
Shanxi UniversitySigned PA
Sheffield Children's NHS Foundation TrustSigned PA
Sheffield Hallam University 
Sheffield Teaching Hospitals NHS Foundation Trust 
Shrewsbury and Telford Hospital NHS TrustSigned PA
Simon Fraser University 
South Tees Hospitals NHS Foundation Trust 
St George's University Hospitals NHS Foundation TrustSigned PA
St George's University of LondonSigned PA
Stanford University 
Swansea UniversitySigned PA
Swinburne University of Technology 
Technische Universitat Munchen 
Tel Aviv Sourasky Medical Center 
Temple University 
The Open University 
Thomas Jefferson University 
Trinity College Dublin 
UK Genetic Testing Network 
Ulster University 
Uniklinik Koln 
Unique 
Universitair Medisch Centrum Utrecht 
Universitat Pompeu FabraSigned PA
Universitatsklinikum Munster 
University College Dublin 
University College LondonSigned PA
University College London Hospitals 
University Hospital Southampton NHS Foundation TrustSigned PA
University Hospitals Birmingham NHS Foundation TrustSigned PA
University Hospitals Bristol NHS Foundation TrustSigned PA
University Hospitals Leuven 
University Hospitals of Leicester NHS TrustSigned PA
University Medical Center GroningenSigned PA
University of Aberdeen Signed PA
University of AdelaideSigned PA
University of Alberta 
University of Amsterdam 
University of Antwerp 
University of Auckland 
University of BaselSigned PA
University of BathSigned PA
University of Bergen 
University of BirminghamSigned PA
University of Bonn 
University of Bradford 
University of British Columbia 
University of California, Berkeley 
University of California, Davis 
University of California, Los Angeles 
University of California, San Diego 
University of California, San Francisco 
University of California, Santa Cruz 
University of CambridgeSigned PA
University of Central Lancashire 
University of Chicago 
University of Colorado Denver Opted out of data access
University of Copenhagen Signed PA
University of Duisburg-Essen 
University of DundeeSigned PA
University of Dusseldorf 
University of East AngliaSigned PA
University of EdinburghSigned PA
University of EssexSigned PA
University of ExeterSigned PA
University of Ferrara 
University of FloridaSigned PA
University of Geneva 
University of Genoa 
University of Glasgow 
University of Gottingen 
University of Guelph 
University of Hawaii 
University of Hertfordshire 
University of Iowa 
University of KentSigned PA
University of LeedsSigned PA
University of LeicesterSigned PA
University of LeuvenSigned PA
University of Liege 
University of LiverpoolSigned PA
University of Louisville 
University of ManchesterSigned PA
University of Maryland 
University of MelbourneSigned PA
University of Miami 
University of Michigan 
University of Milan 
University of Minnesota Twin Cities 
University of Modena and Reggio Emilia 
University of Monterrey 
University of Naples Federico II 
University of NavarraSigned PA
University of Newcastle Upon TyneSigned PA
University of North Carolina at Chapel Hill 
University of North Carolina Healthcare 
University of NorthamptonSigned PA
University of NottinghamSigned PA
University of Oklahoma 
University of OtagoSigned PA
University of OxfordSigned PA
University of Pavia 
University of Pennsylvania 
University of Pisa 
University of Queensland Signed PA 
University of ReadingSigned PA
University of Santiago de CompostelaSigned PA
University of SheffieldSigned PA
University of South Wales 
University of SouthamptonSigned PA
University of St AndrewsSigned PA
University of SurreySigned PA
University of SussexSigned PA
University of Sydney 
University of Tasmania 
University of Texas Southwestern Medical Center 
University of the Highlands and the IslandsSigned PA
University of the West of EnglandSigned PA
University of Toronto 
University of Tubingen 
University of TurkuSigned PA
University of Twente 
University of Ulm 
University of WarwickSigned PA
University of Washington 
University of Western AustraliaSigned PA
University of WestminsterSigned PA
University of YorkSigned PA
University of Zurich 
Uppsala University 
Vanderbilt University 
Velindre NHS Trust 
Victor Chang Cardiac Research InstituteSigned PA
Victoria University of WellingtonSigned PA
Walton Centre NHS Foundation Trust 
Washington University in St Louis 
Weizmann Institute of Science 
Wellcome Trust 
Wellcome Trust Sanger InstituteSigned PA
West Midlands Academic Health Science Network 
Yale University