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InstitutionParticipation Agreement status
AADC Research Trust
Academisch Medisch CentrumSigned PA
Aix Marseille UniversiteSigned PA
Albert Einstein College of Medicine
Alder Hey Children's HospitalSigned PA
Aristotle University of Thessaloniki
Azerbaijan National Academy of Sciences
Babraham InstituteSigned PA
Bangor University
Barking Havering and Redbridge University Hospitals
Barts Health NHS Trust
Basildon and Thurrock Hospitals NHS Foundation Trust
Baylor College Of Medicine
Belfast Health And Social Care Trust
Bellvitge Biomedical Research InstituteSigned PA
Birkbeck University of London
Birmingham Women's and Children's NHS Foundation TrustSigned PA
Boston Children's Hospital
Bournemouth UniversitySigned PA
Brigham and Women's Hospital
Brighton and Sussex University HospitalsSigned PA
Bristol UniversitySigned PA
Broad Institute of MIT and Harvard
Brown University
Brunel University LondonSigned PA
Cambridge University Hospitals NHS Foundation TrustSigned PA
Cancer Research UK
Cancer Research UK Cambridge Institute
Cardiff and Vale University Health BoardSigned PA
Cardiff UniversitySigned PA
Centre for Genomic Regulation
Centre for the Advancement of Sustainable Medical Innovation
Centre Nacional d'Analisi Genomica
Centro Nacional de Biotecnologia (CNB-CSIC)Signed PA
Centro Nacional de Investigaciones Oncologicas
Chelsea and Westminster Hospital NHS Foundation Trust
Children's Hospital of Eastern Ontario Research InstituteSigned PA
Children's Hospital of Philadelphia
Children's National Health System
Chinese Academy Of Medical Sciences
Christie NHS Foundation TrustSigned PA
Ciliopathy AllianceSigned PA
Cleveland Clinic
Columbia University
Consejo Superior de Investigaciones Cientificas
Croydon Health Services NHS TrustSigned PA
Dalhousie University
Datchet Health Centre
DEBRASigned PA
Derby Teaching Hospitals NHS Foundation Trust
Dudley Group NHS Foundation Trust
Duke University
Durham UniversitySigned PA
East and North Hertfordshire NHS TrustSigned PA
Epsom and St Helier University Hospitals NHS Trust
Erasmus University Medical CenterSigned PA
European Bioinformatics InstituteSigned PA
European Institute for Health Records
European Molecular Biology LaboratorySigned PA 
European Organisation for Rare DiseasesOpted out of data access
Francis Crick InstituteSigned PA
Frimley Health NHS Foundation Trust
Garvan Institute of Medical Research
Genetic Alliance UKSigned PA
Genetic Alliance US
Genome Analysis Centre
Georgia State University
Ghent University
Glasgow Caledonian UniversitySigned PA
Gloucestershire Hospitals NHS Foundation Trust
Great Ormond Street HospitalSigned PA
Grampian Health BoardSigned PA
Gustave Roussy
Guy's and St Thomas' NHS Foundation TrustSigned PA
Gwangju Institute of Science and Technology
Hannover Medical School
Harvard University
Health Education England
Heart of England NHS Foundation Trust
Hellenic Pasteur InstituteSigned PA
Hokkaido University
Homerton University Hospital NHS Foundation TrustSigned PA
Hopital Saint Louis
Hospital for Sick ChildrenSigned PA
Hospital Infantil Universitario Nino Jesus
Hull and East Yorkshire Hospitals NHS Trust
Icahn School of Medicine at Mount Sinai
Ichthyosis Support Group
Imagine Institute
Imperial College Healthcare
Imperial College LondonSigned PA
Indiana UniversitySigned PA
Institut Curie
Institut de Recherches Cliniques de Montreal
Institut du Cerveau et de la Moelle epiniere
Institut National de la Sante et de la Recherche Medicale
Institut Paoli-Calmettes
Institute for Research in Biomedicine BarcelonaSigned PA
Institute of Cancer ResearchSigned PA
Institute of Cardiometabolism and Nutrition
Institute of Food Research
Istituto Superiore di Sanita
Instituto Nacional de Saúde Doutor Ricardo JorgeSigned PA
Jackson Laboratory
Johns Hopkins University
Johns Hopkins University School of MedicineSigned PA
Josep Carreras Leukaemia Research InstituteSigned PA
Karolinska Institutet
Keele University
King's College Hospital NHS Foundation TrustSigned PA
King's College LondonSigned PA
Lancashire Teaching Hospitals NHS Foundation Trust
Lancaster UniversitySigned PA
Lebanese American University
Leeds Congenital Hearts
Leeds Teaching Hospitals NHS Trust
Leiden University Medical Center
Leipzig University
Liverpool Heart and Chest Hospital NHS Foundation Trust
Liverpool School of Tropical Medicine
Liverpool Womens NHS Foundation TrustSigned PA
London North West Healthcare NHS TrustSigned PA
London School of Economics and Political ScienceSigned PA
London School of Hygiene and Tropical Medicine
Ludwig Boltzmann Institute of Osteology
Ludwig Maximilian University of Munich
Lund UniversitySigned PA
Luton and Dunstable University Hospital NHS Foundation TrustSigned PA
Macquarie UniversitySigned PA 
Maidstone and Tunbridge Wells NHS Trust
Manchester University NHS Foundation TrustSigned PA
Massachusetts General Hospital
Massachusetts Institute of Technology
Max Planck Institute
McGill UniversitySigned PA
Medical Research CouncilSigned PA
Medicines & Healthcare products Regulatory Agency
Melanoma FocusOpted out of data access
Memorial Sloan Kettering Cancer Center
Michigan State University
Middlesex UniversitySigned PA
Moffitt Cancer Center
Monash UniversitySigned PA
Moorfields Eye Hospital NHS Foundation Trust
National and Kapodistrian University of AthensSigned PA
National Cancer Centre Singapore SingHealth
National Center for Advancing Translational Sciences
National Institute of Allergy and Infectious Diseases
National Institute of Mental Health
National Institute of Neurological Disorders and Stroke
National Institute of Neuroscience
National Institutes of Health
National Research Council of ItalySigned PA
Newcastle upon Tyne Hospitals NHS Foundation Trust
NHS Blood and Transplant
NHS England
NHS Greater Glasgow and Clyde
NHS Lothian
NHS Tayside
NIHR Oxford Biomedical Research Centre
Norfolk and Norwich University Hospitals NHS Foundation TrustSigned PA
North Bristol NHS TrustSigned PA
Norwegian University of Science and Technology
Nottingham Trent UniversitySigned PA
Nottingham University Hospitals NHS TrustSigned PA
Odense University Hospital
Office of Health Economics
Ontario Institute for Cancer ResearchSigned PA
Osaka University
Oxford Brookes University
Oxford Deanery
Oxford University Hospitals NHS Foundation Trust Signed PA
Papworth Hospital NHS Foundation Trust
PHG FoundationOpted out of data access
Plymouth Hospitals NHS Trust
Poole Hospital NHS Foundation Trust
Portsmouth Hospitals NHS TrustSigned PA
Primary Ciliary Dyskinesia Family Support GroupOpted out of data access
Queen Mary University of LondonSigned PA
Queen's University BelfastSigned PA
Queensland Institute of Medical Research Berghofer Medical Research Institute
Radboud University
Research Center for Molecular Medicine of the Austrian Academy of ScienceSigned PA
RIKENSigned PA
Robert Jones and Agnes Hunt Orthopaedic Hospital NHS Foundation Trust Signed PA
Roswell Park Cancer Institute
Royal Brompton and Harefield NHS Foundation TrustSigned PA
Royal College of Surgeons in IrelandSigned PA
Royal Devon and Exeter Foundation NHS TrustSigned PA
Royal Free London NHS Foundation TrustSigned PA
Royal Liverpool and Broadgreen University Hospitals NHS Trust
Royal Marsden NHS Foundation TrustSigned PA
Royal National Orthopaedic Hospital NHS TrustSigned PA
Royal United Hospitals Bath NHS Foundation Trust
Royal Wolverhampton Hospitals NHS Trust
Sage Bionetworks
Saint Petersburg State UniversitySigned PA
Salford Royal NHS Foundation TrustSigned PA
Salisbury NHS Foundation Trust
San Raffaele Hospital
Sandwell and West Birmingham Hospitals NHS Trust
Sanford Burnham Prebys Medical Discovery InstituteSigned PA
Shanxi UniversitySigned PA
Sheffield Children's NHS Foundation TrustSigned PA
Sheffield Hallam University
Sheffield Teaching Hospitals NHS Foundation Trust
Shrewsbury and Telford Hospital NHS TrustSigned PA
Simon Fraser University
South Tees Hospitals NHS Foundation Trust
St George's University Hospitals NHS Foundation TrustSigned PA
St George's University of LondonSigned PA
Stanford University
Swansea UniversitySigned PA
Swinburne University of Technology
Technische Universitat Munchen
Tel Aviv Sourasky Medical Center
Temple University
The Open University
Thomas Jefferson University
Trinity College Dublin
UK Genetic Testing Network
Ulster University
Uniklinik Koln
Unique
Universitair Medisch Centrum Utrecht
Universitat Pompeu FabraSigned PA
Universitatsklinikum Munster
University College Dublin
University College LondonSigned PA
University College London Hospitals
University Hospital Southampton NHS Foundation TrustSigned PA
University Hospitals Birmingham NHS Foundation TrustSigned PA
University Hospitals Bristol NHS Foundation TrustSigned PA
University Hospitals Leuven
University Hospitals of Leicester NHS TrustSigned PA
University Medical Center GroningenSigned PA
University of AberdeenSigned PA
University of AdelaideSigned PA
University of Alberta
University of Amsterdam
University of Antwerp
University of Auckland
University of BaselSigned PA
University of BathSigned PA
University of Bergen
University of BirminghamSigned PA
University of BrightonSigned PA
University of Bonn
University of Bradford
University of British Columbia
University of California, Berkeley
University of California, Davis
University of California, Los Angeles
University of California, San Diego
University of California, San Francisco
University of California, Santa Cruz
University of CambridgeSigned PA
University of Central Lancashire
University of Chicago
University of Colorado Denver Opted out of data access
University of Copenhagen Signed PA
University of Duisburg-Essen
University of DundeeSigned PA
University of Dusseldorf
University of East AngliaSigned PA
University of EdinburghSigned PA
University of EssexSigned PA
University of ExeterSigned PA
University of Ferrara
University of FloridaSigned PA
University of Geneva
University of Genoa
University of Glasgow
University of Gottingen
University of Guelph
University of Hawaii
University of Hertfordshire
University of Iowa
University of KentSigned PA
University of LeedsSigned PA
University of LeicesterSigned PA
University of LeuvenSigned PA
University of Liege
University of LincolnSigned PA
University of LiverpoolSigned PA
University of Louisville
University of ManchesterSigned PA
University of Maryland
University of MelbourneSigned PA
University of Miami
University of Michigan
University of Milan
University of Minnesota Twin Cities
University of Modena and Reggio Emilia
University of Monterrey
University of Naples Federico II
University of NavarraSigned PA
University of Newcastle Upon TyneSigned PA
University of North Carolina at Chapel Hill
University of North Carolina Healthcare
University of NorthamptonSigned PA
University of NottinghamSigned PA
University of Oklahoma
University of OtagoSigned PA
University of OxfordSigned PA
University of Pavia
University of Pennsylvania
University of Pisa
University of QueenslandSigned PA 
University of ReadingSigned PA
University of Santiago de CompostelaSigned PA
University of SheffieldSigned PA
University of South Wales
University of SouthamptonSigned PA
University of St AndrewsSigned PA
University of SurreySigned PA
University of SussexSigned PA
University of Sydney
University of Tasmania
University of Texas Southwestern Medical Center
University of the Highlands and the IslandsSigned PA
University of the West of EnglandSigned PA
University of Toronto
University of Tubingen
University of TurkuSigned PA
University of Twente
University of Ulm
University of WarwickSigned PA
University of Washington
University of Western AustraliaSigned PA
University of WestminsterSigned PA
University of YorkSigned PA
University of Zurich
Uppsala University
Vanderbilt University
Velindre NHS Trust
Victor Chang Cardiac Research InstituteSigned PA
Victoria University of WellingtonSigned PA
Walton Centre NHS Foundation Trust
Washington University in St Louis
Weizmann Institute of Science
Wellcome Trust
Wellcome Trust Sanger InstituteSigned PA
West Midlands Academic Health Science Network
Yale University

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