100,00 Genomes Project Documentation
Participant consent forms for adults
Consent form for participants with cancer or suspected cancer
Personal consultee declaration form – for personal consultees of participants with cancer or suspected cancer
Consent form for participants with a rare genetic disease and their adult relatives
Personal consultee declaration form – for personal consultees of participants with a rare genetic disease and their adult relatives
For families of patients with rare genetic diseases
Consent form to include sample(s) and information in the Project from an adult who has died – for the nominated representatives, relatives or friends of a deceased adult with a rare genetic disease
Participant consent forms for children
Consent form for a child participant – for parents of a child with cancer or suspected cancer
Consent form for a child participant – for parents of patients with a rare genetic disease
Assent form for children and young people with cancer or suspected cancer, aged 6-15 years
Consent form to include sample(s) and information in the Project from a child who has died – for parents of a (deceased) child with a rare genetic disease
Other documentation
100,000 Genomes Project Protocol
Cancer data model
Rare Diseases data model
Sample Handling Guidance
GeCIP Documents
GeCIP Guidance Document
GeCIP Rules Document
Genomics England Participation Agreement
Genomics England Publication Moratorium
Genomics England Publication Policy