...
This document provides a summary of the Publication Moratorium that affords certain GeCIP domains preferential permission to publish work on data in their area of research. The proposed system makes assumptions about the schedule and system for data release into the Research Environment, which may turn out to be different; suggestions and comments are welcome. The moratorium summary will ultimately form part of the GeCIP guidance for research and publication document.
...
Genomics England has instigated a per participant Publication Moratorium on data of all types (including that generated from clinical reports) from the 100,000 Genomes Project, offering a degree of preferential permission to publish on analyse participant data for publication, in recognition of those domains and individuals that have assisted in recruiting to the project. In effect, the moratorium will prevent other GeCIP researchers from publishing carrying out research on that domain’s corresponding data until the domain has had access to the data for at least nine months. The moratorium can be disregarded on a case by case basis for a given project if there is prior agreement from the domain’s lead or there is collaboration between the respective domains.
...
It is expected that individual domains will not be unduly obstructive in requests for collaboration, and will consider cross-domain collaboration over competition, where they feel there is conflict with their research plans. The Publication Moratorium does not prevent any individual accessing any data, merely restricts the publication analysis for publication of any findings from a domain’s corresponding data to members of that domain.
...
Once the moratorium period has passed for a participant, any researcher may publish their findings on analyse this participant’s data, although it is expected that collaborations will be pursued between domains and researchers so that the research project benefits from the extensive expertise present within the GeCIP community. Out of moratorium, publications will undergo a mandatory assessment by Genomics England on a ‘first-come, first-served’ basis independent of when or by whom the original research project was registered. This process will check whether any publication moratorium has been broken, that no identifiable data has been inadvertently released, whether the paper contains any intellectual property that may need to be protected, and that the paper has been prepared in accordance with the stipulations made in the Publication Policy.
...
Some participants are recruited to the Project under more than one disease category and their data may therefore be associated with multiple domains. In this case, the ‘owner’ domains may all publish work on this data and do not need to seek permission or collaboration from each other. Researchers in other domains who wish to publish on analyse data from these participants need only seek permission or collaboration with one of the owner domains.
...