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Genomics England has instigated a per participant Publication Moratorium on data of all types (including that generated from clinical reports) from the 100,000 Genomes Project, offering a degree of preferential permission to publish on participant data, in recognition of those domains and individuals that have assisted in recruiting to the project. In effect, the moratorium will prevent other GeCIP researchers from publishing research on that domain’s corresponding data until the domain has had access to the data for at least nine months. The moratorium can be disregarded on a case by case basis for a given project if there is prior agreement from the domain’s lead or there is collaboration between the respective domains.
It is expected that individual domains will not be unduly obstructive in requests for collaboration, and will consider cross-domain collaboration over competition, where they feel there is conflict with their research plans. The Publication Moratorium does not prevent any individual accessing any data, merely restricts the publication of any findings from a domain’s corresponding data to members of that domain.
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