The 100,000 Genomes Project dataset contains millions of data points, and limitless opportunities for research and discovery. Its complexity requires detailed guidance and governance, the pages below have been created with the aim of guiding you through both the dataset and the necessary bureaucracy.
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Briefly, each domain must have their research plan approved by the Genomics England's Access Review Committee. To conduct research on a genome from the 100,000 Genomes Project a researcher must be either a member of the domain to which that genomes 'belongs', or be working in collaboration with that domain. The ARC approval for either of those domains should cover the research project, and that research project should be registered on the Research Registry.
The project's Research Registry entry should be kept up-to-date as the project progresses, and the project should be carried out in a collaborative manner welcoming new researchers who express an interest and will contribute to the project. All analysis will need to be conducted within the Genomics England Embassy, and summary analyses will need to exported from the embassy via an 'airlock' process. If a project progresses to publication, the draft article will need to be ratified by Genomics England prior to submission.
Any and all intellectual property resulting from research using the 100,000 Genomes Project dataset will be wholly owned by Genomics England.