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100,00 Genomes Project Documentation 

Participant consent forms for adults

Consent form for participants with cancer or suspected cancer

Personal consultee declaration form – for personal consultees of participants with cancer or suspected cancer

Consent form for participants with a rare genetic disease and their adult relatives

Personal consultee declaration form – for personal consultees of participants with a rare genetic disease and their adult relatives

For families of patients with rare genetic diseases

Consent form to include sample(s) and information in the Project from an adult who has died – for the nominated representatives, relatives or friends of a deceased adult with a rare genetic disease  

Participant consent forms for children

Consent form for a child participant – for parents of a child with cancer or suspected cancer

Consent form for a child participant – for parents of patients with a rare genetic disease

Assent form for children and young people with cancer or suspected cancer, aged 6-15 years

Consent form to include sample(s) and information in the Project from a child who has died – for parents of a (deceased) child with a rare genetic disease

Other documentation

100,000 Genomes Project Protocol

Cancer data model

Rare Diseases data model

Sample Handling Guidance

GeCIP Documents

GeCIP Guidance Document

GeCIP Rules Document

Genomics England Participation Agreement

Genomics England Publication Moratorium

Genomics England Publication Policy


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